Saturday, June 7, 2008

Update

Sorry I have not posted in so long. Long story short, we switched GI doctors and are SO PLEASED we did! But of course that meant things were going to move fast (as we got in with him very quickly). He wanted us into Jewish Children's which meant calling them and explaining what was happening with JJ. I talked to four different people and finally got a call and was asked to come in in two days. WOW!

So that meant even more rushing around and scrambling for in two days he was having the test for EE done. We got everything fixed up and went.

MAN yesterday was HARD on JJ. It was GREAT meeting with Dr. Atkins at Jewish Children's. I have done a lot of research on allergies (from since 2004) and it was VERY interesting to hear his take on all that research. I had even learned some stuff he had not heard of before. We talked for about 2 hours. We go back on Monday for skin testing (NOT looking forward to that).

Something he mentioned which is new to me is that the rotation diet and wide variety of foods I have been trying to give JJ (because I do not want him to become allergic to something) might actually be causing him more harm than good. He said that there was no evidence, at least not in science or his personal experience, to show that an allergy develops from having too much of a certain food. Basically it follows with Dr. Toomey's belief. That someone has an allergy to a food. That sometimes you react immediately, and sometimes you are able to eat more and more of it until you reach that threshold. It is at that point that a person thinks that because they have had too much of a thing, they have developed an allergy to it. When in fact, they have always been allergic to it, it is just now they have had enough of it to show signs.

He said a LOT of stuff and my head is spinning. LOL!

Then the new GI doctor did the endoscopy and sigmoidoscopy on JJ. Most everything was fine except the esophagus. There is white all over it. Dr. B (the new GI doctor) took a biopsy and thinks it might be a fungal infection. There might also be the presence of EE there. We will wait for the biopsy results. I am supposed to meet with him sometime next week to discuss them. LOVING Dr. B!

If it is a fungal infection, I am wondering if the EE (white blood cells) are actually a way of fighting off the fungus? My friend suggested that we can try treating for JJ and it might actually help. I am wondering if those whose children have been diagnosed with EE have tried treating for candida and seen any results??

JJ did NOT do well with the anesthesia. He went under fine, but woke up with a start and vomiting and bowel movement and screaming. I was not in the room when he woke up. He continues to throw up and not keep liquids down. HE slept fine last night and drank a full bottle of coconut water (our electrolyte drink as JJ is allergic to Pedialite). He was able to keep it down. But woke up at 4AM having a LOT of dry heaves. :( We gave him some more coconut water. He did fine. He ate some rice puff cereal and seems to be doing well.

I hope this is all over for him (that the anesthesia is fully wearing off). I do NOT look forward to all the future skin tests that JJ will have to go through. :( Any advice for how to help him through that? How do explain to a two year old that this is for his benefit?? :(

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