First, a praise to God for JJ getting in with the feeding therapist we wanted him to. She is the only one who drives up once a week to work with the specialist doctor we are seeing. We were told it would take months before she had an opening. So we are so thankful to God for getting us in.
Now comes the difficulties.
No one knows that we have taken him off the formula. I know I need to call and talk to the specialist, BUT I need to have some weight checks done first.
Secondly, they like to do the feeding clinic weekly, and it is on the other side of town. So twice (sometimes three times a month), I will be away from my other girls (because we homeschool) for 4 hours and 3 hours in the same week. This is not doable for my husband. It already had put a strain on him that I was gone for four hours every other week with JJ's physical and occupational therapies.
We don't know what to do other than to pay someone to watch the girls at our house. I must admit that I do wish that the specialist was able to come to your house. That would make things easier on us. But I am sure it would make things more difficult for the therapists. But especially for the feeding clinics, for those with severe allergies, my home in full of foods JJ can have. It would be so much easier so they can help change my HOUSE/environment to meet JJ's feeding needs. But I digress.
Your prayers for us are appreciated as we try to find someone who is willing and meets our standards. Or for Him to provide a different solution.
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