PROGRESS

We have been trying several of the techniques shown to us by the specialist in order to get JJ to eat. Today, after weeks of him refusing to eat cut up meat, he ate chopped up meat! We got the chopper, and I put sliced deli meat in it, gave a few chops and had JJ chop a few times. At first, it just sat on his plate. Then he took a pinch. Then another and in no time his plate was clean of meat and rice! WOOHOO!

We have also been doing a lot of research on the reflux issue. I have been adding a liquid calcium magnesium supplement to JJ's evening drink. It has really helped him sleep through the night.

He gets a papaya chewable after a meal where he actually EATS something (more than two bites).

And I have also started adding apple cider vinegar to his evening drink. He is actually waking up HAPPY in the morning!

As for physical and occupational therapy, he is doing fabulous! He still is very low tone and they are working on him with touching textures.

I am so thankful to know TERMS now of what he is and what he needs to be doing! He is still not where he needs to be, and I have no idea how long therapy will last (especially now that they are adding feeding therapy).

I must admit I am so frustrated. They did a feeding evaluation right after his release from the hospital (end of Oct 2007), and said he would be fine. I told them he wouldn't and that we needed this. If only they had listened to me.